Patients

Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL)

GBT is committed to improving the lives of people living with sickle cell disease and strives to incorporate patients’ perspectives and needs into our development programs. To that end, we partner with the SCD community to provide support to community-based organizations, patient advocacy groups and umbrella organizations that represent collective patient voices and interests through sponsorships, grants and charitable contributions.

The Access to Excellent Care for Sickle Cell Patients Pilot Program (ACCEL) is a new grant opportunity to accelerate the development of promising programs that have the potential over time to deliver high-quality healthcare to people living with SCD. U.S.-based nonprofit organizations serving patients living with SCD and their families are eligible to receive grant awards of up to $50,000 during a 12-month period.

Suggested access-to-care pilots may include, but not are limited to:

  • Building a community outreach model from an existing SCD program to extend the reach of care
    A lack of clinicians knowledgeable in the provision of evidence-based, quality care is a key challenge for SCD patients. This type of proposal would focus on building a community outreach model to extend the reach of care. Examples could include telemedicine, community health outreach worker, patient navigator, or equivalent models aimed at patient education, SCD care plan adherence, and improving links between patients, caregivers, and providers.
  • Expanding available capacity by partnering with non-SCD stakeholders
    This type of proposal would focus on efforts aimed at improved access to healthcare specifically by building upon existing organizational capacity/infrastructure or by empowering providers in community settings to deliver quality care for patients with sickle cell disease. Examples could include: partnering with Federally Qualified Health Care Centers (FQHCs) or regional health networks to provide SCD-related care.
  • Improving transition between pediatric to adult care
    Improving the transition process for adolescents and young adults with sickle cell disease while focusing on a care model that includes multidisciplinary, comprehensive care that is accessible, well-coordinated and evidence-based protocol driven is critical to ensure optimal long-term outcomes. This type of proposal would address ways to overcome challenges with the transition from a pediatric care setting to adult SCD treatment centers or adult health care providers.
  • Innovative Nurse Practitioner outreach care models
    Nurse Practitioners (NPs) can play a pivotal role in the provision of SCD-related care. This type of proposal would focus on innovative approaches to NP-lead care that promote wellness and care coordination.
  • Innovative Training Programs
    Clinician training is critical to the prevention of long-term complications and improved long-term survival among SCD patients; however, many clinicians lack the necessary training to care for SCD patients. This type of proposal would focus on novel approaches to physician and other health care provider training on the management of SCD and SCD patients’ needs.

To be considered for support, applicants must:

  • Be a U.S.-based nonprofit organization dedicated to SCD and are exempt from taxation under section 501(c)(3) of the Internal Revenue Code. Proof of tax-exempt status will be required.
  • Have the organizational capacity needed to manage the proposed project’s timeline and deliverables.
  • Submit a completed application to patientadvocacy@gbt.com by 5 p.m. Pacific Time on May 1, 2019. Applications received after the deadline will not be evaluated.
  • Only one grant proposal application per organization will be considered.

GBT will host Q&A sessions from 10-11 a.m. Pacific Time on March 8, March 22, April 5 and April 19. The conference call number for these sessions is 1-800-747-5150 and the passcode is 822-8734.

For more information about ACCEL, please see the resources below or contact GBT at patientadvocacy@gbt.com or 1-800-741-9102.